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Have a seat! Thank you for coming to our neighborhood meeting! Today's topics of discussion are newborn screening, awareness, advocacy efforts, and Calls to Action.
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Let's start with our "Berlin Declaration." JMF received over 200 signatures from physicians in support of implementation of screening for
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Severe Combined Immunodeficiency around the world! Before we continue, it is time to read our informative press releases and
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other important documents so you're ready to join the discussion! Today’s meeting is adjourned but I am still here to answer any of your questions.
Press Releases
It’s always busy in the Global Village, and that’s why we want to share all the important activities and topics at the Town Hall. This is where you can find all of our press releases on global awareness, physician education, research, patient support, advocacy, and more.
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Jeffrey Modell Foundation Awards $3.7 Million For Global Primary Immunodeficiency Research
To date, $3.7 million has been awarded by the Jeffrey Modell Foundation (JMF) for research into genetic immunodeficiency diseases known as Primary Immunodeficiency. Research programs focus on translational research and support of underserved regions with healthcare disparities, with projects currently being conducted in 32 countries led by 45 leading investigators.
Click here to read the full release.
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New SPIRIT® Software Will Save $42 Billion in Healthcare Costs with Early Detection of Primary Immunodeficiency
JMF is set to launch an updated version of their SPIRIT® Analyzer software which is capable of saving $42 billion in preventable healthcare costs. After conducting a multi-year study, this upgraded and highly advanced screening tool will be introduced to major healthcare organizations and hospital networks.
Read the full release here
Click here to learn more about the SPIRIT® 3.0 Analyzer
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Understanding the immune system offers remarkable opportunities for conquering diseases
For more than 30 years the Jeffrey Modell Foundation (JMF) has focused its efforts on the immune system because it holds the key to conquering many diseases that have plagued humankind. Millions of people around the world die needlessly from conditions that could be cured or prevented if the immune system functioned normally. The failure of the immune system to function properly contributes to two-thirds of the deaths of all Americans who die from infections each year.
“Simply put, harnessing the power of the immune system represents one of the single greatest disease-fighting, and life-saving strategies that biomedical science has to offer. The best medicine lies within us!” exclaims Fred Modell, Co-Founder of JMF.
Read the full release here.
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Jeffrey Modell Centers Network Sustains Vast Global Expansion
In light of the need for greater physician education and public awareness for Primary Immunodeficiency (PI), the Jeffrey Modell Research & Diagnostic Centers continue to open in cities and countries around the world.
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Jeffrey Modell Foundation Celebrates Awareness Week by Highlighting Wishes & Dreams
In celebration of World Primary Immunodeficiency Week (WPIW), the Jeffrey Modell Foundation (JMF) has created a new virtual awareness initiative by attaching “wishes & dreams” to their annual balloon launch. Entitled worldPIwish, short animated films will be shared on JMF’s social platforms daily, with the Foundation spotlighting and highlighting different groups of people who are important to the Primary Immunodeficiency community. The new campaign launches Sunday, April 22nd.
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Jeffrey Modell Centers Network Continues To Reach New Heights with Vast Global Expansion
There is an overwhelming and fundamental need for greater physician education and public awareness for Primary Immunodeficiency. In response, the Jeffrey Modell Foundation's (JMF) pledge to help affirm an absolute commitment to clinical and basic research in order to better understand and treat this condition, has materialized in the opening of 11 new Diagnostic and Research Centers and Networks across five continents; Africa, Australia, Asia, Europe, and North America.
Read the full press release here.
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Virtual Balloon Launch Goes Viral Reaching 9 Million People
"We decided to create a Virtual Balloon Launch. We took a chance; hoping people would see the video. We would have been thrilled to reach 10,000 viewers. But this initiative went "viral" almost immediately, quickly reaching more than 1 million a day and still going strong." -Fred Modell, JMF Co-Founder
Read the full press release here.
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One Balloon, One Life Saved… Raising Awareness for Primary Immunodeficiency
"Let's raise the balloons together, as one strong voice to affirm our dedication, passion, and commitment to our mission… to raise awareness, improve diagnosis, and advocate for equal access to treatment of PI worldwide. One balloon… one life saved. All we're asking is for people to share and help create awareness" said Vicki Modell, Co-Founder.
- Jeffrey Modell Foundation Fulfills Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease
- Jeffrey Modell Foundation Launches New PSA Campaign Creating Greater Awareness of Primary Immunodeficiency
- Jeffrey Modell Foundation Launches First CHILDREN!® Project
- Study Reveals $40 Billion in Potential Savings in Healthcare Costs
- Couple Extends Multi-Million Dollar Commitment to Screen Every Newborn Baby For "Bubble Boy" Disease
- Jeffrey Modell Foundation Awards $1 Million for Translational Research
- Too Sick to Dream?: Foundation Gives Children a Chance to Reach for Their Dreams
- Global Foundation Appoints Executive Director
- David W. Levinson “Sells Out” American Museum of Natural History at Jeffrey Modell Foundation 25th Anniversary Gala!
- Angel Flight Northeast Partners with Jeffrey Modell Foundation, National Campaign Launched
- Positive Changes for Primary Immunodeficiency Patients in Latin America
- Couple Makes Multi-Million Dollar Commitment to Screen Every Newborn Baby for “Bubble Boy” Disease
- Foundation Challenges African Physicians from 17 Countries to Implement Regional “Call to Action”
- Jeffrey Modell Foundation Joins with 20 Countries to Launch World Primary Immunodeficiency Week
- Jeffrey Modell Foundation Plans Historic Middle East Meeting
- Jeffrey Modell Foundation Hosts Middle East Summit
- Bill & Melinda Gates Foundation and Jeffrey Modell Foundation Announce Collaboration to Eradicate Polio Worldwide
- Foundation Joins with 32 Countries to Launch World Primary Immunodeficiency Week
- Latest Victims of Sequestration are Newborns! JMF Fights for SCID Babies
- Jeffrey Modell Foundation Hosts First Global Summit in Berlin
- “Berlin Declaration” Mandates Newborn Screening Globally
- Global Polio Study Begins
- “He’s a Kid” is not a Diagnosis, Could it be Primary Immunodeficiency?
- Why Newborn Screening has Economic Benefits
