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Have a seat! Thank you for coming to our neighborhood meeting! Today's topics of discussion are newborn screening, awareness, advocacy efforts, and Calls to Action.
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Let's start with our "Berlin Declaration." JMF received over 200 signatures from physicians in support of implementation of screening for
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Severe Combined Immunodeficiency around the world! Before we continue, it is time to read our informative press releases and
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other important documents so you're ready to join the discussion! Today’s meeting is adjourned but I am still here to answer any of your questions.
Calls to Action
Early diagnosis can often mean a world of difference because it translates to early intervention. The Jeffrey Modell Foundation empowers our community with “Calls to Action”. Together, with our global partners, we are strong advocates committed to enhancing earliest possible diagnosis with access to equal and appropriate treatments for all patients around the world. Our efforts have brought us to where we are today. Please see the results below.
A Call to Action... A Global Resolution
Jeffrey Modell Centers Summit – June 8-12, 2016
The Jeffrey Modell Foundation celebrated its 30th Birthday in June with a four-day Global Summit in Los Angeles, California. More than 275 world-renowned Immunologists and scientists from 52 countries gathered to share their research, as well as, their expertise in the diagnosis, treatment, and management of Primary Immunodeficiencies.
At the conclusion of the Summit, a Call to Action… a Global Resolution, was drafted and has been signed by hundreds of physician experts.
View the full Global Resolution
Download now
The Berlin Declaration
Jeffrey Modell Centers Summit – July 17-20, 2013
Immunologists from all Jeffrey Modell Diagnostic and Research Centers were brought together by the Jeffrey Modell Foundation for a three-day Global Summit in Berlin, Germany. The physician-experts represent the world’s leadership and are authorities in the diagnosis, treatment, and management of Primary Immunodeficiencies. At the conclusion of the Symposium, the physicians agreed on a set of guiding principles.
View the full Berlin Declaration
Download now
Primary Immunodeficiencies in Latin America
A Call to Action
The Latin America Primary Immunodeficiency Community including the Latin American Society for Immunodeficiencies (LASID), the Jeffrey Modell Foundation (JMF), and the International Patient Organization for Primary Immunodeficiencies (IPOPI) invite Latin American governments to endorse and sign the Primary Immunodeficiencies (PI) Call to Action. We call on Latin American governments to take heed of these devastating and under-diagnosed diseases by developing national strategies that address PI.
View the full Latin America Call to Action
Download now
Africa Call to Action
Driving Diagnosis for Optimal Care
Who We Are:
We are representing the Primary Immunodeficiency Community in Africa and worldwide. The Jeffrey Modell Foundation (JMF – www.info4pi.org), a global organization dedicated to early and precise diagnosis, meaningful treatments, and ultimately, cures of Primary Immunodeficiencies together with the African Society for Immunodeficiencies (ASID – http://www.asid.ma), a society that has placed Africa solidly in the concert of nations that understand and promote the knowledge and treatment of Primary Immunodeficiencies.
View the full Africa Call to Action
Download now